Sunday, August 9, 2020

SMA Awareness Day #9


This shirt was from the last Hingham Walk n Roll that we attended. I am pretty sure we made it to this walk. There was a walk one year that it was cold and rainy and we ended up not actually going. But that was kinda okay because it gave us more time to just hang out with the Reilly clan at their house instead of rushing to get 3 SMA kids and numerous adults out of the house by 8 o’clock!  

 I love that they had this silhouette on their shirts for a couple of years  So sweet.  


 

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Today.  Casey slept in until a bit after 11:00 which is normal for a Sunday.  Since we had finished Stranger Things Casey wanted a Scottish marching band and Gene found some interesting ones on YouTube.  


Projects be damned.  We decided to take a drive to the islands  just for the heck of it-ans did Gene to use his pizza card at  the pizza place up there.  We ended up driving over the drawbridge just because.  Stopped to eat pizza on the causeway.  Beautiful day.  Gene put one of our SMA rocks on one of the pylons.  We’ll see if anyone finds it and posts it on ROCKin’ SMA.  We have 4 other rocks out there and no one has posted :(


Right now I’m listening to Casey fuss to Nurse Alice.  He’s been a crappy sleeper for the last week.  I hope tonight is better.  


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