Scooby Doo Quilt from Barb and the SMA Moms

I received a package in the mail the other day.  It was from a fellow SMA Mom, Barb.  Barb is mom to Lucy who has SMA type 1 and lives in Wisconsin.  I guess I've known her since Lucy was an itty-bit.  She is now, hmm, 10??  Anyway, I thought to myself: this is nice.  Barb must have seen that I was looking for filters for Casey's vent and sent me some.  Weird that she insured it." I opened the box.  It wasn't filters.  I opened up the box to find the most beautiful quilt!

I pretty much crumpled to the ground. I was so surprised.  This is such a tough time of year for me, and all who love Colin. It was his time of year.  He loved all things 'scary.' He had every single Scooby Doo VHS./DVD of all the Scooby shows and movies.  He loved Halloween and pumpkins. It will be 5 years in November that we have had this huge hole in our lives of missing him.  Sometimes it feels like he's been gone 5 minutes and sometimes it feels like 50 years and everything in between.  

Can you see the label she put on?  "In honor of Colin Robert O'Neill Loved and Missed."  I always write 'Loved and Missed' when I share photos or stories about him.

The craftsmanship is beautiful. I don't know anything about quilting but I know this is nice work and it's not easy and it's time consuming.  I know she put her heart into making it. I wish you all could see it in person.  The colors, the patterns, the choices of fabric!! I have no clue as to how she quilted it in a spider web pattern--so perfect!

This summer a group on Facebook was started for SMA Moms.  This group is a bunch of moms that share and support each other, with NO drama.  It's refreshing to be with a group of moms of all ages, from so many countries, so many different places in their lives...but we all come together to hold each other up, in the good times and in the bad/sad times.  Thank you.  

Wasted day :(

Well, it was a wasted day for me. Gene worked from home (luckily for me), Casey had a thumbs up day at school, and Colin got a couple of runs (although the TV wasn't working for much of the day) and even the dog and cats were content. Me, I had a migraine. I had some little niggling headaches throughout the weekend that I was able to stave off with 600mg of ibuprofen, but today it hit hard. I was having some weird flashes of dark and light and I was nauseous. So, after Casey got off to school and Colin had his neb and meds and Lauren came, I hit the bed with my icepack. I know I drifted off pretty quickly and slept hard for a while.

I came to this afternoon and ventured downstairs for a while and ate some fritata that Gene had made. Oh, and somewhere in there I made a fruity, icy smoothie. Cold always does my head and stomach good.

Aunt Chris came with DVDs for the boys. A new Scooby Doo movie came out on yesterday and AC was right there to get it for her Colin! She found a Super Bowl DVD for Casey so he was very happy, too.

Nurse Julie came over with some yummy food; ham, scalloped potatoes, baked beans, mixed veggies and carrot cake. Delicious!

I hope I can sleep tonight! Casey and Julie are in the shower. Colin is watching a movie in the wish room. He decided that he wanted to stay out there this afternoon/evening. Gene went out for a bit and left me with the stinky cheese dog. He really smells like cheese! Darn rain!

Scooby Doo is in the dog house :(

For the first time since Priscilla implemented the Scooby Doo behavior plan--Colin lost his 4 Scooby Doo snacks and Scooby was sent to his dog house. Colin would not stop obsessing about Megamind. He was watching it (for the first time since he saw it in the theater) this morning and wanted to finish it so badly that he couldn't stop saying, "Megamind, Megamind, Megamind." So, he lost his snacks one by one. This means no gaming this afternoon! This could be rough for ALL of us!