Casey's follow up with Dr. Hubbell went okay. Casey's left ear was "moist" and looked like it had some debris so Dr. Hubbell used his trusty suction wand sucked it out :) He wants us to treat Casey's ear with Ciprodex two times a day for a week. He also had, at my request, a little talk with Casey about listening to music too loud with his ear buds. I forget what words he actually used but maybe Julie will remember, but we were going to use them as our mantra when Casey asks to have his ipod music turned up. I guess my poor brain is still fuzzy and tired from camp if I can't even remember, oh dear.
We were in the exam room for about 6 minutes tops. I think I waited to make a follow up appointment longer than we were in the exam room, sigh. But that's okay.
I turned the keys over to Julie and she drove us over to Trader Joe's. Ran into Lynne Moon on her way out. Good to see her, if only for a couple of minutes.
Casey and Julie did their thing and wandered around the perimeter while I poked around on my own. Very overwhelming! I had planned on getting some goodies to send to our counselors at camp so I focused on looking for snack foods. Found some freeze dried blueberries, some yummy looking trail mix and some chocolate covered sunflower seeds. Then I looked for the Orange Chicken that Jennifer always talks about. Picked up some yummy sounding side dish with quinoa, sour dough bread and a Greek salad.
Casey asked one of the employees if they had any magazines....that's my boy!! Then he promptly asked Julie to take him to Barnes & Noble, ha ha. He also wanted to buy Dada flowers so I had him pick out a bunch. He picked out a very vibrant looking bunch of sunflowers.
Showing posts with label Dr. Hubbell. Show all posts
Showing posts with label Dr. Hubbell. Show all posts
Tuesday, June 17, 2014
Monday, March 3, 2014
Ears
We made it out of the house on time today--8:15 or so. Gene had warmed up the van and got us a little gas so that was a good thing. It was 0 degrees!
Ran into Debbie from school in the lobby of Fletcher Allen. I guess she works as a customer service rep as well as at school. She tried to get Casey to chat with him but he wasn't having any of it.
Got in to see Dr. Hubbell pretty quickly. I noticed that the person checking in after us had an appointment with him 5 minutes after us. He must rake in the bucks seeing patients for only 5 minutes! And, he literally did see us only for 5 minutes. But I guess it was okay. He tried to look in Casey's left ear and couldn't see a thing because of all the debris in there. So he got a good sucking out. We teased him because we said we wished the suction hose was clear so we could see the junk coming out. Nurse Julie and I love that kind of stuff--as long as it's coming from Casey, anyway. He suggested we now do Ciprodex drops for 7-10 days and then come back in 3 months. I had asked about new tubes but he said let's wait and see.
Got a coffee from the kiosk and headed up to see Mrs. Marshall, Julie's mom. She was in for a 'tune-up'. She is getting some IV antibiotics and respiratory treatments (no, she does not have a flu or anything catching). So, we made her day :) She was happy to see Julie, and then I came in and then she was over the moon to see Casey. He was perfect! No loud vocalizing. He was nice and quiet and listened and said a few things on his DynaVox.
Hit the gift store and Casey wanted to get Grandma (well, we call her that) a book. We know she likes puzzle books so we picked her out one and some Jolly Ranchers. Julie ran them upstairs to her while Casey and I got him on wifi.
We were fading, at this point, so we headed home to get some food.
Colin was good for Gene. He wanted to doze and listen to the radio so Gene just worked from the wish room and Colin hung out in bed.
I got Colin washed up and dressed and everyone settled into the living room.
Had a little lunch.
Took advantage of Julie being here and Gene so I went up for a nap. Julie and the boys played some wii.
I made some Rice Krispies treats. Played some more wii. Talked to Chris, Mom and Dad. And that's where we are now.
Oh, earlier, Gene said, "Where's Jaxon?" Usually Jaxon is in the living room or up our butts following us around. I went and looked for him and found him, Moxie and Nugget staring at a dead vole in the yellow room!! GROSS!!! I guess the voles taste really bad so they don't eat them, but they were still interested in watching the dead thing. I think it was Nugget that got it. I had seen him sitting by the back room not long before--that's usually a sure sign that there's a creature. Thank goodness Gene was home to get rid of it!
Ran into Debbie from school in the lobby of Fletcher Allen. I guess she works as a customer service rep as well as at school. She tried to get Casey to chat with him but he wasn't having any of it.
Got in to see Dr. Hubbell pretty quickly. I noticed that the person checking in after us had an appointment with him 5 minutes after us. He must rake in the bucks seeing patients for only 5 minutes! And, he literally did see us only for 5 minutes. But I guess it was okay. He tried to look in Casey's left ear and couldn't see a thing because of all the debris in there. So he got a good sucking out. We teased him because we said we wished the suction hose was clear so we could see the junk coming out. Nurse Julie and I love that kind of stuff--as long as it's coming from Casey, anyway. He suggested we now do Ciprodex drops for 7-10 days and then come back in 3 months. I had asked about new tubes but he said let's wait and see.
Got a coffee from the kiosk and headed up to see Mrs. Marshall, Julie's mom. She was in for a 'tune-up'. She is getting some IV antibiotics and respiratory treatments (no, she does not have a flu or anything catching). So, we made her day :) She was happy to see Julie, and then I came in and then she was over the moon to see Casey. He was perfect! No loud vocalizing. He was nice and quiet and listened and said a few things on his DynaVox.
Hit the gift store and Casey wanted to get Grandma (well, we call her that) a book. We know she likes puzzle books so we picked her out one and some Jolly Ranchers. Julie ran them upstairs to her while Casey and I got him on wifi.
We were fading, at this point, so we headed home to get some food.
Colin was good for Gene. He wanted to doze and listen to the radio so Gene just worked from the wish room and Colin hung out in bed.
I got Colin washed up and dressed and everyone settled into the living room.
Had a little lunch.
Took advantage of Julie being here and Gene so I went up for a nap. Julie and the boys played some wii.
I made some Rice Krispies treats. Played some more wii. Talked to Chris, Mom and Dad. And that's where we are now.
Oh, earlier, Gene said, "Where's Jaxon?" Usually Jaxon is in the living room or up our butts following us around. I went and looked for him and found him, Moxie and Nugget staring at a dead vole in the yellow room!! GROSS!!! I guess the voles taste really bad so they don't eat them, but they were still interested in watching the dead thing. I think it was Nugget that got it. I had seen him sitting by the back room not long before--that's usually a sure sign that there's a creature. Thank goodness Gene was home to get rid of it!
Tuesday, February 5, 2013
Pamidronate Infusions, ugh
So we're here. Casey went in first. Infusion Bay is very busy today. They only had space for one boy at first so we volunteered Casey.
Julie and I got him out of his chair and comfy on the bed. IV came right in to get him started. He needed some warm packs and towels because his hands and arms were freezing, but it's about 8 degrees out so I'm not surprised.
IV Nurse Micki got his IV in pretty quickly (for us, anyway). Success on first try in left wrist.
Colin was another story. He ended up with 3 picks, total. One successful, finally. I was not happy but I didn't actually see when they were poking. Colin was a trooper although he did "OW" a lot and had shed a tear, but no full blown crying. It took the two IV nurses trying but they were successful in his left antecubital.
Colin was very happy watching movies. His first one was Tron. After that I tried reading City of Orphans with him but didn't get too far. He is going to be in big trouble with Priscilla tomorrow because we didn't read as far as we were supposed to. Funny how during the movie he hardly "owed" at all but when I was reading he was full of "ows."
Casey went through periods of being good and being very needy. He had a grand time yanking the Child Life Specialist's chain :) Jenny was a good sport about it and played along with him. He was telling her that he wanted a funny movie/show about animals that is normally on during the day. He had her scouring the Internet looking for this show--that doesn't exist, lol! I think she was impressed with his DynaVox use and tried to honor his requests.
Casey was done right at 2:00. The nurse had called ahead to Dr. Hubbell's office to say we might be a tad late. We only had to wait for a minute before they took us back and Dr. Hubbell came in right away. Casey has only one tube which is in his right ear (he's been like this for a couple of years now). The left ear looked perfect. His right ear had lots of 'debris' that Dr. Hubbell sucked out. Julie and I both wish that the suction tubing was clear so we could see what gunk came out of him, lol! He also looked in the back of his throat because Casey had said it hurt yesterday but it looked nice and healthy to him.
Interesting aside here. Yesterday Casey told Julie several times that his throat hurt. She looked in his mouth and felt around but didn't see anything concerning. Then, at bed time, I could hear something in Casey's throat when I suctioned his mouth. It took a lot of work--coughing, saline and pressing on his tongue--but I got a pretty large plug out that was very stringy. I wonder if that was bugging/hurting him????? With Casey, it's hard much of the time to know when he's being serious or just telling us tales, so this was interesting to me.
Colin was still infusing when we were done so Julie and Casey packed themselves up and went downstairs to check out the gift shop.
Finally, Colin was done infusing and had his saline flush and was done by 3:00.
Headed down to find Casey and Julie. Got the van. Loaded up. Julie drove home.
It was a very weird drive home. Casey was quiet as a mouse and we are NOT used to that! I kept asking Nancy if they were okay back there.
These infusions sure wipe the boys out. Casey even more so than Colin. Casey looks pale and puffy and tired. Colin looks a little pale but is quite full of it and is yelling at Aunt Chris while she plays wii. Casey goes from being very quiet to fussing loudly, doing a little talking on his DynaVox.
I felt very comfortable driving the van. It sits higher than our old van and the nose is longer but it was pretty easy to drive. YAY!! It will take us a little bit longer to get used to tying down the boys chairs but we did pretty well. It would help if it wasn't as cold so we could be more comfortable while we work on positioning and all that. But it's nice to have these Q'Straint QRT Max tie downs. It literally takes one hand to secure them and one foot and a hand to undo them. So much nicer than our old ones that I don't even know the name of!
Julie and I got him out of his chair and comfy on the bed. IV came right in to get him started. He needed some warm packs and towels because his hands and arms were freezing, but it's about 8 degrees out so I'm not surprised.
IV Nurse Micki got his IV in pretty quickly (for us, anyway). Success on first try in left wrist.
Colin was another story. He ended up with 3 picks, total. One successful, finally. I was not happy but I didn't actually see when they were poking. Colin was a trooper although he did "OW" a lot and had shed a tear, but no full blown crying. It took the two IV nurses trying but they were successful in his left antecubital.
Colin was very happy watching movies. His first one was Tron. After that I tried reading City of Orphans with him but didn't get too far. He is going to be in big trouble with Priscilla tomorrow because we didn't read as far as we were supposed to. Funny how during the movie he hardly "owed" at all but when I was reading he was full of "ows."
 |
| Woozy Colin. |
 |
| Grump and woozy Casey |
Casey was done right at 2:00. The nurse had called ahead to Dr. Hubbell's office to say we might be a tad late. We only had to wait for a minute before they took us back and Dr. Hubbell came in right away. Casey has only one tube which is in his right ear (he's been like this for a couple of years now). The left ear looked perfect. His right ear had lots of 'debris' that Dr. Hubbell sucked out. Julie and I both wish that the suction tubing was clear so we could see what gunk came out of him, lol! He also looked in the back of his throat because Casey had said it hurt yesterday but it looked nice and healthy to him.
Interesting aside here. Yesterday Casey told Julie several times that his throat hurt. She looked in his mouth and felt around but didn't see anything concerning. Then, at bed time, I could hear something in Casey's throat when I suctioned his mouth. It took a lot of work--coughing, saline and pressing on his tongue--but I got a pretty large plug out that was very stringy. I wonder if that was bugging/hurting him????? With Casey, it's hard much of the time to know when he's being serious or just telling us tales, so this was interesting to me.
Colin was still infusing when we were done so Julie and Casey packed themselves up and went downstairs to check out the gift shop.
Finally, Colin was done infusing and had his saline flush and was done by 3:00.
Headed down to find Casey and Julie. Got the van. Loaded up. Julie drove home.
It was a very weird drive home. Casey was quiet as a mouse and we are NOT used to that! I kept asking Nancy if they were okay back there.
These infusions sure wipe the boys out. Casey even more so than Colin. Casey looks pale and puffy and tired. Colin looks a little pale but is quite full of it and is yelling at Aunt Chris while she plays wii. Casey goes from being very quiet to fussing loudly, doing a little talking on his DynaVox.
I felt very comfortable driving the van. It sits higher than our old van and the nose is longer but it was pretty easy to drive. YAY!! It will take us a little bit longer to get used to tying down the boys chairs but we did pretty well. It would help if it wasn't as cold so we could be more comfortable while we work on positioning and all that. But it's nice to have these Q'Straint QRT Max tie downs. It literally takes one hand to secure them and one foot and a hand to undo them. So much nicer than our old ones that I don't even know the name of!
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