Once again I had hoped that the boys would sleep in but no go.  We're going to have to try to get them to sleep early tonight because Casey has to get up 'before the chickens' as Nancy H would say.

Colin got his shower.  Got him in his game day clothes.  Isn't he handsome/cute/etc? 

Colin and his Tom Brady bobblehead

Casey got his gear on, too.  

 Casey with his gear on and Daddy's football from when he was little

I have two handsome dudes!

And, speaking of handsome, we gave Jaxon a bath earlier.  Funny, for a dog that is supposed to love water, he HATES taking a shower.  But he smells so much better and his bedding is all fresh  and clean.

Fresh and clean Jaxon

We've been having problems with our Comcast TV and DVR.  It's been shuttering and stopping both during regular watching and during the DVR.  Well, we're trying to watch the big game and can hardly stand it because the quality of the picture is so poor.  So, Gene decided to reset the modem.  I guess it wasn't the best idea because now we have nothing.  It would go in a loop of reloading and then just stop.  Sigh.  Good thing the Patriots are losing--well, you know what I mean.  So Gene got on the phone with Comcast and they tried to trouble shoot but it looks like we need a new cable box/modem/hard drive thingy. They'll be here between 1 and 3 PM tomorrow.  But, Gene saved the day and hooked up the box from our bedroom so we could see the last of the game.  Oh well, Patriot's will get 'em next year!

AC came over for a little bit but wanted to head home before it got too dark.  It snowed about 3 inches last night and started up again this afternoon and she is not a happy driver in the snow.

Tomorrow is Casey's bronchoscopy.  Nurse Julie is getting here at 5:30 and we have to leave here at 6AM.  Check in, IV and all that and then procedure at 7:30.  Please send prayers, good thoughts, good vibes our way. 

Making progress on Colin's new chair and a fun package

Casey was off today in a good mood. He ended up doing okay. He had some time outs in the hallway but he spent some time in class, phew! Things are still new and I know he likes to have things more concrete and settled than they are right now, but Mel is working hard to nail down his schedule and routine!

Colin, well, he had a stinky morning. Lots of complaining and not listening very well. He got lots of strikes and outs. I'll have to go and count). He made 10 cents for one good listening period.

Colin did better this afternoon and made a quarter :) The TV had some issues. I guess the drops in his other classrooms (his homeroom/main class is fine) aren't working.

Spent 2 and a half hours with the "chair" people. Missy, (The Medical Store), Paul (seating for Children with Special Health Needs) and our rep from Invacare were here. THANK YOU SO MUCH, Nikki, Heather and Sandy for sharing pics of your kids in the Solara/Spree chairs and paving the way to getting Colin a wheelchair that he can be comfortable in and meet his needs! It's so nice not to have to start totally from scratch! I had pictures of 4 kids that Missy printed out so that we could see what parts/accessories/modifications that they made so that the kids can lay flatter (like our Easy S medical stroller) and have room for equipment and to have a functional push handle, etc. The rep was very impressed and excited to see what others have done.

Jaxon was a super pain in the butt while we were trying to get this all done. Luckily, all three of the "chair" people like dogs so they dealt okay with him hopping all over us and 'snuffling' their hair and bringing them his toys and barking when I finally put him in his crate, sigh. Julia even tried to bring him out but he was so hyper and wild that she couldn't get him to stop gnawing on the leash!

Today we received our package from Busy Bee Sewing for SMA (Peggy McBee). Peggy makes some beautifully sewn things and profits go to SMA research. I ordered 3 covers for oxygen tanks; 2 'E' tanks and an 'M' tank. They look great! I wanted something for older boys and since we're re-doing Casey's room in flames, I asked if she could use flame material...Here's Casey with a pillow case that she added to our order!

And, here's one of the oxygen tank covers.

Check her out on Facebook...BusyBee Sewing for SMA or on Etsy

"100% of the proceeds from this shop will be donated to Sophia's Cure Foundation (http://www.sophiascure.org/) to help fund Gene Therapy Research for SMA."

Owww!

Jaxon and I dashed outside to, um, pee and play some ball before the storm came in. We did our pee and were playing with the ball when, CRACK!, the thunder started! He seemed okay with the thunder and then an even huger one came and I think we both jumped 10 feet in the air! We grabbed the ball and I put the leash back on and started bolting for the house because torrential rain started. We were rounding the corner and I slipped (I was wearing my crocs!) I think Jax pulled me 5 feet before he realized I was down. Ouch! My whole left side, especially my shoulder and knee are already sore and achy and killing me!