5 prescriptions later...

Took Colin in to see Dr. Queyquep this morning.  We came out with drops for his eyes, drops for one ear, antibiotics for the slight crackles in his lower lobes (trying to ward off a true bronchitis), possibly two nebs for his lungs (wanted Xopenex but it requires a prior auth so we may have to do one or two nebs of Albuterol before we get the Xopenex).  And, we're to give him probiotics twice a day.  Hmm, I guess that's it.

Funny thing is, I thought he was much better today.  I thought we'd just get something for his eyes, which are red, watery and producing a goopy green discharge.  But one ear was full of debris, very wet and retracting.  I asked her what retracting meant in this case and she said that it was kind of pulsating due to the pressure.  Ugh.  And, since he was starting to have some crackles, we want to ward off any secondary infection.  Oh, and his temp was 99.9 at the office and he was still under the influence of ibuprofen, so I guess we'll keep up with the rotating schedule of Tylenol and Ibuprofen. 

As promised, I got him a chocolate munchkin from Dunkin Donuts so it made him happy. 

Long story, but he was supposed to make salsa today during his Unified Arts class with Mel.  But Mel had to cover for a para that was out, so we decided to let Colin sleep in a bit and have Priscilla come at her normal 8:50 time.  He'll get to do his 'cooking' tomorrow.

Casey is off to his outing to the UVM campus to visit the Francis Colburn Gallery (William Science Hall) and the staff art exhibit currently showing at the Davis Center.  I hope he has fun.  It could go either way--you never know with him!!

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Casey was nervous when he first got to the gallery but then he settled in.  Julie sent me these pictures. 

He said he was confused about the art.  The picture of the brain interested him but 'confused' him he said.  At least he was commenting on the art, which is what we want :)

Physicals for the boys

Boys went to Mousetrap to see Dr. Queyquep for their yearly physicals.  We always get them in right before camp. Camp requires that we get certain info filled out by the boys' docs, have their immunizations up to date and documented, etc. 

We had Nurse Julie and Nurse Nancy H here (Nancy has started doing 5 hours on Tuesdays with Colin during the day.  She usually does Casey).  We got out of the house on time, yay!  Made it to our 10:00 appointments.  It's so nice having the boys' pediatrician literally 4 minutes from the house.

Casey went first.  No real concerns.  Talked about how his hands feet get cold/mottled.  She just thinks it's the nature of the beast (SMA) and an autonomic response because the nerves aren't sending signals to his extremities to 'move' so the area becomes stagnant.  These are my words--not quite sure how she put it.  Nothing new to us, but just kind of concerning because it's never been this prevalent before.  We've also noticed that when we put him in the shower, his hand become bright red.  I guess that's the blood returning to his extremities again. 

With Colin it's a little different.  He does get the cold hands/feet sometimes but he seems to be more puffy/edemic in his hands lately.  He's lost some movement and range in his hands recently, especially in his pointer fingers.  We may try some compression socks (ha ha, Colin hates socks so I don't have much faith that he will wear them) and hand 'socks'.  I *think* we may be able to talk him into wearing them.  We'll see.  We do lots of range with him and we do some massage,but we'll have to try to do better, and try to keep his arms up, and not hanging down, as much as possible.

Casey's ears looked okay.  Some debris but no infection.  Colin was his waxy self, but fine. 

Ear infection for the big