Disappointing day (but it was beautiful weather!!)

The engineer from UVM was supposed to come today to meet the boys and check out their switch access and see if he may have some ideas on making things easier and more accessible for the boys.  Claire (OT from school who initiated all this) called me early this morning to let me know that he had to cancel for today.  Bummer!  He's working on some big project and needed the time to do it.  We'll look at scheduling again for a couple of weeks out.  BUT, she didn't call me too early because I already had my special brownies made!  So the nurses, Aunt Chris and I got to enjoy them instead of having to share them with the UVM engineer and school people :)  They were most excellent.  Very fudgy with chocolate chips inside and chocolate frosting.

Then we got the boys ready for their first neighborhood walk this summer.  Nancy decided to take Casey's manual chair instead of his power chair (she isn't the most confident of manueverers) and Casey isn't ready to drive on Route 7 (they only have to go a little way on the main road).  But, I'd like to be there the first time he uses his power chair for a walk like that.  Anyway, he didn't mind.  I wiped it all down and put the fresh covers on the seat so it was all fresh.  After being in Julie's car for a week it had pollen all over it!  The boys hit a garage sale but didn't want anything.  I'm pretty surprised but sometimes they're like that, ha ha.

I had the house to myself for 55 minutes!!!  The phone didn't ring (I should have thought to silence it) and the animals were quiet so I had some real quiet time.  I heated up some leftovers from dinner--yummy grilled chicken breasts and some spinach sauteed with bacon and walnuts and a big glass of water.  I sat for the whole meal!!  Watched my judge show and enjoyed the quiet and wondered how the boys were doing ;-)

Boys and their Nana's (two Nancys) did their own thing when they got back.  They were a little warm but it's not humid at all.  Beautiful, tiniest bit of a breeze, blue skies, about 83 degrees.  Ahhh!

My other disappointment came when I learned that Casey's vent did not arrive at the Apria branch.  I was pissed!!  It was supposedly ordered on Tuesday.  Thought it would be in on Thursday.  No such luck for Thursday.  Called today.  NOPE!  No one had tracked it or looked into why it hadn't come.  I was livid!  I tried not to take it out on the RT but where was the branch manager???  ON VACATION!!  Ridiculous!   I am very thankful that we weren't planning on going out of town this weekend.  Long story but RT called back and they have a vent that was going back on the shelf and the RT on call will grab it and bring it if needed.  I guess we'll have to bag him or I could try to set up one of Colin's for him...I'm kind of worried because this vent has the same tag on it saying it needs to be checked in June of 2013 which is what the one that gave the "vent inoperable" reading on Tuesday.

Brought Jaxon out for two Frisbees plays today.  One time he went down by the pond and dropped the Frisbee and started toward the street.  Not a good thing. But I held up the other Frisbee and called to him and he came back, thank goodness!

Watered the front (and only) garden this evening.  I went out with my rain jacket on (first jacket handy) so I wouldn't get eaten up by the mosquitoes.  This way I only had to swat away by my face.  I hate that they are so rampant this year.  They're even out during the day hours. 

planting and ipad

The boys were almost perfect for me last night!  I almost forgot that I was nursie :)   We did have one mishap.  Colin has some overflow of formula in his venting syringe.  He didn't get wet but the comforter did.

I actually got up earlier than I needed to because I was so rested!  Fooled around with my new laptop, started laundry, unloaded the dishwasher, and that kind of stuff while everyone snoozed away.

Julie came at 10:00.  Casey got his shower.  Movies watched. 

Up in chairs and outside around 1:00.  You'd think we were torturing the boys by bringing them out in this perfect weather!  They NEEDED to watch their ipad while Gene and I planted some flowers and weeded and puttered.  Julie kept them happy changing the ipad and taking short walks to break up the 'dreadful' time they were having.  Really, the weather couldn't have been more perfect AND I remembered the sunscreen for the boys.  Julie put up their umbrellas so they were shaded enough but got to enjoy the fresh spring air.  Jaxon came out, too.  When he's got his harness on and he's out with all of us he behaves like a good dog.  He just wants to be with his people!   He had some water and some shade and he got to be near his boys so he had a good afternoon, too.

Oh, and I got another Mother's Day surprise.  A huge, beautiful Bleeding Heart hanging basket.  I vow to keep it alive.  

We didn't quite finish with the front garden so I didn't take any pictures.  Still need to do some mulching and some weeding and it should be pretty nice. 

After we came back in and got settled, the boys played wii with Julie (Casey double tasked with watching his football).  I got in a nap.  Gene headed out for a while.

While Gene was out shopping, I spent the evening, flipping, fixing ows, finding new football YouTube videos, making formula, cleaning medical equipment, and trying to find the Hall Entrance beetle in Wizard 101.  Whew.

Boys are settled into bed.  I wish I had gotten more things done so I could enjoy some down time tomorrow, but beds will need to be changed, formulas, made and 6 loads of laundry folded and put away.  I'm pretty sure Gene will feed me, so that's a good thing!