Today was the International SMA Awareness Candle Lighting. There are families affected by SMA on all 7 continents--wait, not sure about Antarctica :) But I know for a fact that there are thousands of families in hundreds of countries affected by SMA in one shape or form. And, today, many of them lit a candle to remember those with SMA who have passed on and are Angels in Heaven and to honor those Warriors still on this Earth living and fighting each day. I picture in my mind a crooked, dotted line of candles surrounding the world as candles are lit in each home as 8PM/sunset comes in their time zone. Too bad Google can't capture this strength and beauty!
The boys had an okay day. Usual stuff. Nothing exciting to write about. The boys watched Oz The Great and Powerful which captivated Colin and Casey didn't hate. Colin watched La Bamba and really liked it again. Funny how a movie like this could capture his attention. Casey was totally content watching football on his iPad in his old room for about 3 hours. Nancy played some Potptropica with Colin while Casey flipped channels.
We had our candle lighting and the boys were actually very cooperative. Thank you to our friends who took the time to light candles for my guys and their buddies and posted to my page. See below :)
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| Linda Lang |
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| Melanie Savio |
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| Abby Gladstone-Strobel |
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| Beth Barndt |
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| Staci Wolfe |
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| Lynne Moon |
Here's to hoping for some positive outcomes in the SMA research in the year to come. Truly, there is ground breaking research being done this very minute.
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