The cold bug has arrived at our house. Casey has it. Both Nurse Julie and Nurse Staci came down with colds this weekend (they weren't here over the weekend but were here earlier in the week),
Casey had an ear infection starting around Friday morning...Pretty yucky, some blood and some blobs of mucous came out...so maybe that was his start. But, he was pretty much fine all weekend respiratory-wise but he was kind of fussy and restless Friday night but slept like a log on Saturday night. Last night you could start to hear his voice changing and getting a bit froggy. This morning he insisted he was fine but he was definitely starting to get drippy when he was at school.
So far he's hanging in there. He's needed more coughing and we're just getting thin stuff out. Funny how his oxygen levels stay between 98-100% when he's got 'junk in his trunk.' His heartrate is definitely elevated. He asked to go to bed early and listen to music so that's where he is now. He says he feels hot but his temp is fine. Parts of his body are icy cold while others feel hot to the touch. His nose is dripping and his eyes are watering. I just loaded him up with some Airborne, Tylenol and some decongestant. He's listening to the radio and watching America's Funniest Home Videos and humming/moaning/vocalizing like he feels yucky.
I guess it's no school for him tomorrow. Bummer, because PT and OT were going to work on making a special splint for his switch.
And, Colin, Nurse Nancy and I were supposed to go in for Picture Day and to try out the evacuation plan. But, I've heard lots of kids are sick. (Colin and Casey are in different schools) We could just go in for the pics and the evac and then go home and not go to any classes but still....there's always Make Up Picture Day but that falls in the yuckier sicker season. Sigh.
On another note. I went to my primary today about the ringing in my ears. I've been noticing it lately but I could have had it for years and just not noticed/put it out of my mind. It's been really bugging me lately though. We live near a pond and in the summer we can hear the 'peepers' at night when the windows are open. It's a sound I used to love but now I hear it ALL the time! Imagine hearing peepers day in and day out. Not fun. If I'm really busy I don't notice it much--it's mostly at night when I lay down and I try to sleep. But it's been creeping into my my daytime life now.
I took a hackneyed hearing test (it looked archaic and one nurse was showing the other nurse so it was kind of weird) which showed my hearing is good. No ear wax, no fluid. It's just one of those things that happen sometimes when you get old. Maybe I'll be lucky enough that it will just go away and not get worse.
Monday, September 23, 2013
Sunday, September 15, 2013
Flu shots and tube changes and sleep
Just a quickie.
Both boys got their flu shots on Friday the 13th. I hope that's not a bad omen. Nancy L went and picked them up at Dr. Queyquep's office and gave them. Casey was a champ. Colin had crocodile tears in anticipation and then he was completely fine when it was given and over. He still got a Veggie Tales Band-aide to help him feel better after the ordeal.
Saturday morning the boys slept in until after noon. CRAZY! Not sure how much sleep they got but I'm guessing about 14 hours. They wake a bit with their nighttime cares and such but fall right back to sleep but it's still not quite straight sleep. I actually was getting a bit bored so I decided to have lunch. Usually the minute I touch food the boys need something or the phone rings. Today--nothing. I ate in peace (except for the cats and dogs staring at me).
Mic-key button (g-tube) changes were next. Casey's went quickly and smoothly by Dada. Colin requested me to do his so I tried. I'm pretty squeamish about it which didn't make it easier. Gene had to take over since it didn't go in so smoothly. For some reason Colin's has always been a little trickier to replace. I still remember the tough change back in 2005 when I was on the phone with Karen freaking out because Gene couldn't get it in. I have a list of dates/person changing tube/how it went in each of the boys charts.
Casey had a tub bath and then a trach change. It was about a week early but he had been having some deep stuff so we decided to do it a week early. Came out clean. I know it's weird--for those people who know about trachs--but we only change Casey's trach once a month unless we feel something is going on and he needs it sooner. And, actually, we did do that once or twice this summer and got yucky plugs out attached to the bottom of the trach but that's not a regular occurrence.
I got a lot accomplished while they slept. I actually feel good about what I got done this weekend and it's still only Sunday morning. Gene went out and bought some boards to make the trim and window sills in the kitchen/entryway. It's only been about 3 or so years since we had the windows replaced. We'll see how far he gets with the trim.
Colin woke early this morning and was humming to himself for a long time. Not ready to be up for the day so added a blanket and snuggled him in and he was happy for a long time. Casey 'blew' at about 9:30 so the day has begun. Colin requested Batman and Casey requested football on the ipad. That's where we're at.
Both boys got their flu shots on Friday the 13th. I hope that's not a bad omen. Nancy L went and picked them up at Dr. Queyquep's office and gave them. Casey was a champ. Colin had crocodile tears in anticipation and then he was completely fine when it was given and over. He still got a Veggie Tales Band-aide to help him feel better after the ordeal.
Saturday morning the boys slept in until after noon. CRAZY! Not sure how much sleep they got but I'm guessing about 14 hours. They wake a bit with their nighttime cares and such but fall right back to sleep but it's still not quite straight sleep. I actually was getting a bit bored so I decided to have lunch. Usually the minute I touch food the boys need something or the phone rings. Today--nothing. I ate in peace (except for the cats and dogs staring at me).
Mic-key button (g-tube) changes were next. Casey's went quickly and smoothly by Dada. Colin requested me to do his so I tried. I'm pretty squeamish about it which didn't make it easier. Gene had to take over since it didn't go in so smoothly. For some reason Colin's has always been a little trickier to replace. I still remember the tough change back in 2005 when I was on the phone with Karen freaking out because Gene couldn't get it in. I have a list of dates/person changing tube/how it went in each of the boys charts.
Casey had a tub bath and then a trach change. It was about a week early but he had been having some deep stuff so we decided to do it a week early. Came out clean. I know it's weird--for those people who know about trachs--but we only change Casey's trach once a month unless we feel something is going on and he needs it sooner. And, actually, we did do that once or twice this summer and got yucky plugs out attached to the bottom of the trach but that's not a regular occurrence.
I got a lot accomplished while they slept. I actually feel good about what I got done this weekend and it's still only Sunday morning. Gene went out and bought some boards to make the trim and window sills in the kitchen/entryway. It's only been about 3 or so years since we had the windows replaced. We'll see how far he gets with the trim.
Colin woke early this morning and was humming to himself for a long time. Not ready to be up for the day so added a blanket and snuggled him in and he was happy for a long time. Casey 'blew' at about 9:30 so the day has begun. Colin requested Batman and Casey requested football on the ipad. That's where we're at.
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