Colin tales

Colin has been quite a handful lately, especially at school :)  This is his behavior chart for today.  At least he got 2 runs in the afternoon and NO outs!

 

Last night Gene suctioned Colin's mouth and said he got some yucky yellow. I asked Colin if he was too sick for TV school tomorrow (he's NOT sick at all!) and he said "uh huh, uh huh, uh huh!" I said, "Well, then you'll have to go to the doctor (that didn't phase him since he doesn't mind) and you'll have to take lots of medicine." That got a "NO! NO!" He hates taking medicine...and yes, it would be through his g-tube so I have no clue why. Then, I said, "You'll just have to stay in bed and not watch any movies or play any wii so you can get better." He didn't like that too much and when I asked him again he said he was fine and he'd be okay going to TV school tomorrow!

Colin, Lauren and I have pulled out the Christmas board games.  How many kids do you know that have 3 Christmas board games????????   The other day we played Charlie Brown Christmas (I WON and I got to light up the Charlie Brown tree!)  Yesterday, Colin, Lauren and Aunt Chris played The Polar Exrpress.  Colin won that one.  He was being very funny/odd and kept saying that he saw something scary over by his bed.  I tried to convince him that only nice ghosts, like Casper, come to nice boys' houses.  Or that maybe he saw an elf that was spying on him to see if he was naughty or nice????  Don't think I convinced him.  He watches too many scary shows!

Here are a couple of random pics. 

Just my handsome dude engrossed in a movie.

Playing a vintage Scooby Doo game with Nurse Lauren.

He wants to WIN!

Helping Nurse Lauren play a game on his DynaVox.

It's the little things that count?

That's what they say, right?  It's the little things that count?  Well, I was going to tell you about my 'little thing' that I did yesterday.  After several years of putting it off, I decided that it was the day to consolidate and update my address book.  You know, the ones that are like a loose leaf notebook and you write in??  Does anyone but me even have those anymore??  I set the timer on my stove for 15 minutes (are you familiar with flylady.net?).  I went to work.  I made my way from A through E before the timer went off.  There.  I was pleased with myself.   It's the little things, right?

This morning I woke up and checked out Facebook to discover that one of my favorite little boys with SMA became an angel yesterday.  It's the little things?  I think not. Ironically, Aiden was nick-named Biggie.  Sure, maybe he was big for his age, but he had a big smile and a big personality as well.  He's gone.  That's not a little thing; that's a big thing.  It's the big things that count. 

You will be forever remembered, Biggie.