Wednesday, January 22, 2014

Lots of people this afternoon

Big thing of the day was that from 3:00 to 6:00 it was crazy here with lots of people.

First was Paul from Apria (RT) here to do vent checks on the boys' Trilogys and to check serial numbers of equipment.  I kind of think that somehow we are losing out on some equipment that was probably 'patient purchased' as we had rented it to own, but then Apria swapped it out and we never got to keep it.  For instance, in the paperwork Paul had it said we had purchase 3 suction machines over the years and we only have ONE that they told us was purchased.  There are pros and cons of purchasing equipment anyway, but still.  We do own all of our old blue cough assists, so that's a good thing.  We're only renting the 'new' style cough assist under Colin's name.  With the new insurance, I'm going to get one for Casey.  I hope they don't buck it but we'll see.

While Paul was here a tech from The Medical Store came to fix Casey's power chair.  The chair worked with the attendant control but he couldn't drive it.  Turns out it was the controller thingy that went bad.  It's partially fixed--Casey can drive it, but it still flashes the error until they get us a new cable.  Sigh.

And, while they were both still here, Deb from Biomedics came.  She was here for at least two hours.  She looked at Colin's AFOs, his night time leg braces, and his belly brace.  She added a strap that will help keep Colin's foot in place in his AFOs and added a padding here and there.  She glued the inside foam to Colin's night time braces so they be easier to put on.  She declared that Colin has grown quite a bit since he got his belly brace (TLSO) in March/April of 2013.  His torso had grown about 3 inches!!  So, she'll be putting in a pre-authorization for that.  We MAY try a two piece clam shell instead of the one piece.  I'm collecting some info and pics to show her of how some other families have had them made.  She's fine with it although she says it is bulkier on the sides so I'm still looking at options. 

Deb looked at Casey's AFOs and stretched them out and we used some soup cans to keep them stretched while they cooled.  She flared out a couple of spots on Casey's night time braces.  She reshaped Casey's left hand splint to make it fit better and for his thumb to stay better in place.  So those were all good things to get done.  She is a great orthotist!


2 comments:

  1. Sounds exhausting (but productive).
    Thank you for sharing these sorts of details of your lives.
    Luv Ya,
    Lu Wings (H&H)

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  2. Thanks for checking on us, Lu! Yes, I keep this blog for myself to remember but also for SMA families and those not familiar with a special needs life. I love my life but it certainly isn't 'average', :)

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