Making progress on Colin's new chair and a fun package

Casey was off today in a good mood. He ended up doing okay. He had some time outs in the hallway but he spent some time in class, phew! Things are still new and I know he likes to have things more concrete and settled than they are right now, but Mel is working hard to nail down his schedule and routine!

Colin, well, he had a stinky morning. Lots of complaining and not listening very well. He got lots of strikes and outs. I'll have to go and count). He made 10 cents for one good listening period.

Colin did better this afternoon and made a quarter :) The TV had some issues. I guess the drops in his other classrooms (his homeroom/main class is fine) aren't working.

Spent 2 and a half hours with the "chair" people. Missy, (The Medical Store), Paul (seating for Children with Special Health Needs) and our rep from Invacare were here. THANK YOU SO MUCH, Nikki, Heather and Sandy for sharing pics of your kids in the Solara/Spree chairs and paving the way to getting Colin a wheelchair that he can be comfortable in and meet his needs! It's so nice not to have to start totally from scratch! I had pictures of 4 kids that Missy printed out so that we could see what parts/accessories/modifications that they made so that the kids can lay flatter (like our Easy S medical stroller) and have room for equipment and to have a functional push handle, etc. The rep was very impressed and excited to see what others have done.

Jaxon was a super pain in the butt while we were trying to get this all done. Luckily, all three of the "chair" people like dogs so they dealt okay with him hopping all over us and 'snuffling' their hair and bringing them his toys and barking when I finally put him in his crate, sigh. Julia even tried to bring him out but he was so hyper and wild that she couldn't get him to stop gnawing on the leash!

Today we received our package from Busy Bee Sewing for SMA (Peggy McBee). Peggy makes some beautifully sewn things and profits go to SMA research. I ordered 3 covers for oxygen tanks; 2 'E' tanks and an 'M' tank. They look great! I wanted something for older boys and since we're re-doing Casey's room in flames, I asked if she could use flame material...Here's Casey with a pillow case that she added to our order!

And, here's one of the oxygen tank covers.

Check her out on Facebook...BusyBee Sewing for SMA or on Etsy

"100% of the proceeds from this shop will be donated to Sophia's Cure Foundation (http://www.sophiascure.org/) to help fund Gene Therapy Research for SMA."