Speech, Blood and Trilogy

Busy day today.  Got the boys up earlier than normal so they would be ready for Courtney to come for a SLP visit at 10:00.

Got through to endocrinology and got the okay for the boys to have their calcium and phosphorus taken today instead of the Wednesday and Thursday that they had indicated.  I guess I'm not so good at reading calendars lately.  Anyway, infusions on Tuesday would be a go if we got the blood work done ASAP so results could be read today....

Courtney (SLP)came and chatted with Casey about camp.  He kept talking about car racing (the ADK 400 which is kind of like a Pine Wood Derby race).  He said it made him sad.  Never did figure out why.

Cheryl came for a little while, too.  She's going to be working with the boys some for summer services.  She shadowed Priscilla a bit in the beginning of the year so we were familiar with her-at least Colin and I were.  Casey pretty much warms up to anyone so I'm sure she'll do fine once he puts her through the paces, lol.

Then we packed up and headed out to Blair Park to get the blood draws.  In the Given Building they have a lab set up now and it's part of Fletcher Allen.  We had a good experience there and we'd definitely go back again, which, apparently we will be doing every 3-4 months.  There was only one woman drawing blood but we were the only ones there so we were taken in quickly.  Gave Colin the choice as to whether he wanted to go first or second.  He picked second.

Casey did well.  She found a vein on the inside of his arm pretty easily.  She got him on one stick.  There's not a lot needed for these labs so he was done lickety-split.  Colin's hands got all sweaty and he was nervous, but she did him quickly and easily too.  Done!  The only drawback, if you want to call it one, is that they didn't even get a sticker!  I mean, I know they are 11 and 15 but I still like stickers and I'm on the far side of 40!

Headed home in hopes of Paul being able to bring over Casey's Trilogys.  He was able to, so we spent some time setting up the vents and trying Casey on it.  Well, once again he fretted and freaked and cried and fussed.  We've told him and told him that it will take some getting used to and that he may feel a bit sore (different chest muscles being used) and that Paul will NOT take away the LTVs until we are all feeling 100% happy with the Trilogy.  I truly think it's an emotional thing.  He says it feels different but okay.  I guess when you've relied on a certain machine to help you breathe for the last 10 years you develop an emotional attachment to it.  So, we'll give him time.

This afternoon and evening we've switched him back and forth.  One of these times, I hope, he won't even realize it and it will all be fine.  Tonight will be tricky.  We have the heated humidifier attached to the new vent so I'm hoping we can keep him on it more of the night than less since the LTV will just have a nose on it.