What a day

Finally I am getting to sit for more than 3 minutes at a time.  Been going since 7:00.

Boys had summer school today so we had to get them ready.  And, yes, I had two nurses today; one for each boy, but I still ran my butt off, with phone calls in-between, and the dog and the cats, sigh.

I'm very grateful for the boys having summer services but man, it's a lot of work.  Both boys are doing their services at home, for the most part.  We'll have 5 different providers rotating in and out Mondays through Thursdays for 5 weeks.  That doesn't leave us a lot of time for gallivanting so we'll see if we have to take a couple of days off.

I feel like I have to be there for almost every second.   Finding things, positioning, filling in gaps, coming up with things to do, fixing "ows", etc.  I guess I can't quite explain it but I sure feel it.

Today Casey, Mel and I tried setting up Casey's DynaVox to turn the 'yellow room' TV on and off and have him use the channels.  We got pretty far but we're not done.

Then, Mel worked with Colin while Julie and Casey ran over to her place to pick up some tables and an awning for our tag sale.   We tried to get Colin's DynaVox set up to do the same in another room but it's different version and we got a bit of it done.

For summer school this year we're also working on getting the boys to do more activities together and communicate more with their DynaVox's. Today we attempted Go Fish!  Well, that took a bunch of programming.  We made a page with numbers and some phrases and put them on both boys devices. Then we had to teach them the game and where things were on the page, etc. Sounds easy but the game took probably over an a hour and a half!

Right after summer school Deb from Biomedics came with Casey's new AFOs.  So we had to try those out and see how they fit.  One just needed a bit of stretching.  He also got new sneakers and 4 pair of SmartKnit socks.

Then it was Colin's turn to get casted for new night time let braces.  He actually did pretty well.  His heartrate only binged out at 165 a couple of times.  Maybe after 8 years of her coming he's finally realizing that she doesn't do anything that hurts.  It probably didn't hurt that Julie was playing the Hardy Boys wii with him.  Casey was watching his football and keeping an eye on wii.

Then the dog needed to play Frisbee.  Then there were lots of 'ows' and grumps, etc.  Whew.  Glad the boys are in bed and Gene is reading tonight.

Tomorrow we have no school because Casey needs to go to The Medical Store for a power wheel chair appointment.  And, we have to start working more on the tag sale this weekend.

Oh, yes, I put the tag sale up on Craig's list and the Milton Front Porch Forum.  Julie made us some colorful signs we'll put up bright and early on Saturday.