Casey goes to the bowling alley but doesn't bowl, nutrition update for the boys

Casey went to the bowling alley today with the high schoolers. Testing going on so he was able to get out with the crew and not miss any core subjects. But, what does he choose to do? He decides to play arcade games when everyone else bowled. Oh well.

Colin had a pretty good school day. He was kind of owing a lot in his stander but looked good. Lauren gave him 3 movies for his birthday, one of which is the Lorax. He watched it during break and was sooo funny! He was very emotional about the trees getting chopped down; so cute! He was quite a pill when Emily came at the end of the day--he closed his eyes as soon as he heard the front door open. She said she's going to have to bring something really fun next time to get him out of this new 'habit.'

Me, what did I do today? Not too much. Laundry. Paperwork. Phone calls. Oh, speaking of phone calls, Nancy L talked to someone at the Board of Nursing for NY State about Julie and Nancy doing some time with the boys during camp. She said it was fine. I hope I get this right-as long as they are taking care of Vermont kids there's no problem. I forget the wording, but I'll ask Nancy and write it down. I hope it's true. Long story, but last year was the first year we brought any nurses to Camp Inspiration and we were not able to have them as 'real' nurses because of what we understood the laws to be, so I am kind of confused but happy. We thought they'd have to apply, and pay for, a temporary license in NY and by the time we realized this is was too late since it can take months for the process. I'm going to check in with Nurse Emo at camp and tell her what we've heard and see what she says...

Linda L was here this afternoon and we worked on the boys' diets. Both boys will be going up tiny bits in their calorie, and protein intake--like 5%. I like to do things slowly! I won't make the new changes until she writes everything up and sends her report. The boys are due for new labs so things may change again..

Casey is about 60 1/2 pounds, 60" in height (1/23/97)
Colin is about 45 1/2 pounds, 50" in height (4/4/01)

Both boys have been on their own curve (off of the 'average' child chart) since they were very young. We keep their calorie/nutrition needs on THEIR curve and they have thrived. We've been lucky that the docs and nutritionists have let us take the lead on this. There are many families that have to fight to use the guidelines that have been determined to be beneficial to SMA kids and this is one fight I don't have to partake in. Yay!